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 ALICE'S STORY

 ALICE IS A MIRACLE 

 AND SHE NEEDS 

 YOUR HELP 

ALICE'S STORY

Alice is a miracle. A testament to faith, love, and the enduring human spirit.

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Alice is 5 years old. She loves unicorns and kittens. She always has a smile on her face.

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Alice is fighting for her life, and she needs your help.

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Alice was a miracle. Bibiana has always had difficult pregnancies, including the near loss of her first child, Jacob. After multiple late-term miscarriages, her pregnancy with Alice was flawless. She was the healthy and beautiful baby girl that her father, Daniel, had always dreamed of. Their family had six sweet months with Alice before her symptoms began - high grade fevers, endless crying, and full-body rashes. As doctors’ turned them away with diagnoses of a spoiled child or common cold, her symptoms progressed. She was no longer able move her neck. After almost 9 months of various treatments from numerous doctors and specialists, Alice was referred to a virologist.

Daniel and Bibiana dropped Jacob off at school and headed to the hospital at 10 am on November 31st, 2016. The virologist asked them everything about Alice’s symptoms. Within hours, they were told that they needed to spend the night in the hospital. Confused and concerned, they arranged to have Jacob picked up from school. The doctor ordered an MRI, PETCT and various blood tests. They waited hours for the exam results. At 6 PM, the doctor entered the room with tears in her eyes. She said “I am very sorry.” In that moment, everything collapsed for this small family. Alice had a 3x3 inch tumor surrounding her neck. The hospital room was in chaos - doctors had no idea what hospital could even treat her. The pediatrician recommended Stanford and they arrived by ambulance at 2 AM.

At Stanford, Alice was diagnosed with a rare cancer called multi-system Langerhans cell histiocytosis (LCH). Because it affects 3 major organs in her body, she is considered high-risk. Shortly after, Alice began a 12 month chemotherapy treatment plan. She remained happy and carefree. Even as a toddler, dancing to music in the hospital was her lifeline. By the end of that plan, Alice was very ill and the chemotherapy hadn’t worked. She was too weak to operate on. Her LCH had gotten worse with the chemotherapy.

Shortly after, Alice began a new chemotherapy treatment that Bibiana administered at home. Twice a day for a year and a half, she would don head-to-toe protective equipment to prepare and administer Alice’s medication. During this time, Daniel worked to support the family and pay the mounting medical bills. Their youngest son Matthew was born. Despite the joy he brought them, it came with sadness as it was determined Alice's treatment was also ineffective. Around this same time, the global pandemic hit and Daniel's business - transporting disabled children to and from school - was forced to close. The family relocated to Arizona for work and lower living expenses.

Only one month ago, Alice turned 5 years old. She began salvage chemotherapy in August of 2020. This chemotherapy is much stronger and includes repeated month-long hospitalizations. Her full treatment could take anywhere from 14 to 24 months.

ABOUT ALICE

In many ways, Alice is a normal girl. She loves the color pink and her baby dolls. But at the age of just 13 months, Alice was diagnosed with a rare cancer called multi-system CNS high-risk Langerhans Cell Histiocytosis (LCH). For years, she has undergone various forms of chemotherapy. Despite all of her hardships - years of her life spent in a hospital bed, countless pills, shots, and invasive procedures - she remains endlessly joyous, optimistic, and brave. Dancing to music has always been her lifeline.

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Alice's treatments have taken a great toll on the family's life, financially and emotionally.  The family has countless financial responsibilities, including medical bills, medication, childcare costs while Alice is hospitalized, transportation, activities for month-long hospital stays, etc.  Your donations will be used to give Alice everything she needs for a full recovery, and help ease the stress on her family. 

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Any funds left over after the completion of Alice's treatment will be used to aid other children and their families fighting LCH.

THE FUTURE

The course of Alice’s treatment depends on how she responds to her current chemotherapy.

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If Alice is cancer cell free after her initial course, she will continue a milder chemotherapy for one year.

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If her condition has improved slightly or stayed the same, she will continue with another course of 3 months of strong chemo, evaluate, and followed by one year of mild chemo if cancer free.

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Alice’s last option is a bone marrow transplant. Unfortunately, none of the family members are compatible with Alice to become a donor.

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